Sunday, October 12, 2014

What an ordeal!!!

I know you have all been calling and reaching out to me non-stop, and I wanted to thank you all for your love and support. Here's what has been going on:

I went on this great trial drug (an oral med) and 10 days later got a massive infection of my gall bladder. Just a coincidence. But the side effects of the new drug were pretty tough and then I got slammed by the infection. Because I have to do things the hard way, I didn't get the easy to treat infection that 90 percent of all people get. Nope, I got the one that only 10 percent get that has a high mortality rate!  MSK opened the OR for me on Sunday and inserted a drain which I will have for the next few weeks. Of course my heart rate went crazy from the infection and so I was moved to ICU for 6 days and then a telemetry floor for another 6 days. As that was resolving I got aspiration pneumonia from a coughing fit.

So now that's resolving and I am home in 6B in manhattan with the worlds best dog - the magical Luca.  Here's a picture of us having lunch today. I am extremely fatigued and trying to eat and walk a bit. Its not easy. Plus the emotional toll is pretty heavy! I have to go and see the trial doctor on Wednesday to resume the trial. Yikes. How many ways can I get my arse kicked. Sorry for my non responsiveness. It was all I could do to keep on keeping on. I'm trying to not have visitors right now so that I can recover fully and not be concerned with coming down with something else.

Thank you to my family for their endless love and support. Everyone should have an 85 year old mother like Bobba! 

Carpe Diem.

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