Thursday, June 12, 2014

World Cup 2014 Brazil starts today

Why is this so special you ask? Other than the fact that I love football/soccer!

When I was diagnosed in 2008 I promised Robyn that we would go to World Cup 2010 in South Africa. It was a milestone for me to get there but I did and we had a magnificent time.

Now, World Cup 2014 Brazil has rolled around and once again, I made the pledge to Rob. Well guess what? I'm still "around" and we are off to the FINAL in less than a month.

Need I say more........... 

Carpe Diem.

Wednesday, June 11, 2014

Biopsy results

I just had a really nice chat with the Doctor at Champions Oncology. The company that did the exome sequencing

Basically, she was pleased with what the results yielded. She explained a few things.

1. The fact the mice transplant tumors did not “take" was a “good” thing and not to be concerned about that. The reason being was that the tumor was not aggressive or fast growing.

2. In the report there is a diagram labelled Genetic Alterations with Established Clinical Significance.  One of the genes called RET showed "Rearrangement". That is the key. That is the mutation that is causing the naughty stuff. She was very pleased that it showed up.

3. The drug used to treat this mutation is called Cabozantinib or Cometriq. It’s an oral medication. It’s supposed to be very effective. 


She advised that no changes should be made to my current protocol of Alimta and Avastin until such time as these drugs start failing me!

Carpe Diem………….

Monday, June 9, 2014

Busy week

Just to take my mind off the lousy post chemo days.

Tuesday massage. 

Wednesday sensory deprivation tank.


Friday driving exotic cars.


Carpe Diem.