Met
with Dr. Alex Drilon and Nurse Practitioner Claire Moran from 9:45 to
11:30 Wednesday morning September 17th.
Thanks
to my brother in law Howard for his amazing note taking and
summation, here is a recap of what was discussed as well as the
results of certain routine tests:
Blood
Pressure
117/75
Heart
Rate
119
Dr.
Drilon suggested it was due to anxiety about the appointment. We will
monitor this going forward. I am also off Metoprolol which controlled
the heart rate but I can't be on Metoprolol and Lisinopril (new drug
that lowers protein in urine) at the same time.
Pain/Pain
management.
When
Nurse Moran asked about the level of my back pain on a level of 1 to
10 (the worst), my response was 4-5. For pain management, they want
me on the Hydromophone. What's causing the pain? Who the hell knows.
Best
quote of the day (from Nurse Moran): "You met the
registration criteria (for the Cabozantinib trial) and you are
eligible for the program."
Daily
regimen for taking Cabozantinib (known informally as Cabo):
Take
one 60 mg pill a day with quite a few other restrictions etc.
Other
things to know about Cabo:
Stay
away from herbal meds, Seville oranges and grapefruit.
According
to Claire, Cabo helps shrink the cancers and that will make me feel
physically better.
Cabo
side effects:
Fatigue
Diarrhea....the
#1 side effect.
Skin
changes.... my skin may lighten.
Hair
changes.... my hair may turn white which is irreversible.
Taste
changes.
Possible
blistering on hands and feet.
Cabo
may increase protein levels in urine. Just what I need!
Carpe
Diem.
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