Friday, September 12, 2014

Blindsided again

After numerous (and I mean numerous) scans, blood tests, urine tests and EKG's my urine protein is too high.

For me to enter the trial my protein level needs to be 1.0 or below. Mine was 1.8! If you are on the trial and your level gets to 2.0 then you have to stop the Cabozantinib. The direct cause of the elevated protein level is from me getting Avastin all this time. While the drug had kept my cancer in check for the longest time it was also causing problems with my kidneys.

The only thing for me to do was obviously to not get the Avastin anymore. That is now the case. The next thing I have to do is drink copious amounts of water to essentially flush my kidneys and get rid of the lingering remnants of Avastin. Easier said than done.

So for the next few days I am trying to consume serious amounts of water and I will be going back to MSKCC in New York on Wednesday September 17th. Hopefully the protein will be at an acceptable level and I will be able to start the Cabozantinib.

I don't have to tell you that this was all hugely disappointing but I need to move and and hope for the best.

Carpe Diem.

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