Saturday, September 6, 2014


I had my consult with the lead investigator of the MSKCC (Memorial Sloan Kettering Cancer Center)  trial yesterday. It was a really excellent and productive meeting.

In a nutshell, I will be starting the Cabozantinib treatment at MSKCC's Phase II trial this Friday September 12th. It's a one a day pill.

The doctor was really really nice. As was his oncology nurse. I am really excited to be a part of this trial and work with them.

What was gleaned from my liver biopsy a couple of months ago was that I had a RET rearrangement (mutation) in my cancer cells. Only 1% of the population tested ever has this mutation. So in a way, I'm very lucky indeed.

This is all bitter sweet as I will not be going back to UMD St. Joe's for the foreseeable future. I had spent 5 years there and made a lot of good friends. But time to move on to the next treatment regimen.

The one thing that the Doctor reiterated was that they are no longer looking to (or able to) cure my disease. It now has to be managed. Managed hopefully equals time and quality of life.

Now where did I put my suitcase?

Carpe Diem.

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